Nystagmus Network
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The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
Contact
Website: www.nystagmusnetwork.org
Email: info@nystagmusnet.org
Tel: 01427 718093
Address: 6 Lancaster Gardens, Kingston upon Thames, London KT2 5NL
Social media
Linkedin: Linkedin.com/nystagmusnetwork
Twitter: Twitter.com/NystagmusUK
Facebook: Facebook.com/NystagmusNetwork
Instagram: Instagram/NystagmusNetwork
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Who to contact
- Contact Name
- Sue Ricketts
- Contact Position
- Executive Information and Development Manager
- Telephone
- 01427718093
- info@nystagmusnet.org
- Website
- Website Address
Where to go
- Name
- Nystagmus Network
- Address
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6, Lancaster Gardens
Kingston upon Thames
London - Postcode
- KT2 5NL
- Notes
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We operate a virtual service and have no physical premises however we have website support and information service and telephone helpline available,
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Time / date details
- When is it on
- 24/7 Website support and information. telephone helpline weekdays 9-5
- Time of day
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Afternoon
Evening
Morning - Session Information
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We support all age groups free of charge. Self referral via telephone or email 24/7 support and advice on website 9-5 telephone support service
Other details
Costs
- Table of costs
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Table of costs Amount Cost type Nil Per month - Details
- Membership is available however not a pre requirement to access free support and information
Availability
- Referral required
- No
- Referral details
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We support all age groups free of charge. Self referral via telephone or email 24/7 support and advice on website 9-5 telephone support service
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Other Links
- Related links
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Website Address