PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.

One estimate suggests that up to 1 in 200 children suffer from this condition.

Resources for parents including diagnostic criteria and details of local support groups.

Resources for Medical professionals

Resources for teachers and Schools

Teacher training package

Facebook group for parents/caregivers

Facebook group for Young People age 12-17 with the condition.

Facebook group for Adults

Links to further Research

Advocacy and support from the charity

Who to contact

Contact Name: Vicky Burford
Contact Position: Secretary
E-mail: secretary@panspandasuk.org
Website: My service's website
Notes: Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Where to go

Notes: All of Warrington covered. We provide support via our Facebook group PANS PANDAS UK.

Time / date details

When is it on: 24/7
Time of day: Afternoon
Evening
Morning
Session Information: Please join our Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.

Other details

Costs

Details: Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Referral required

No

Referral details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

https://www.panspandasuk.org/for-educators

Other notes

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